Training materials
Target audience: rare disease patients representatives or Bachelor students or Professor or experimeintal biologist researchers or researchers
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Slides
Life Sciences Research Data Management 2023 Course by ELIXIR Norway
• beginnerData management Data submission, annotation, and curation Data handling Deposition Data retrieval -
Tutorial, Video, Series of videos
Federated EGA: Introductory videos
• beginnerFederated EGA FEGA metadata ELIXIR-CONVERGE Phenotype SARS-CoV-2 -
youtube video, video
Data Management Planning tips
• beginnerData management FAIR data ELIXIR-CONVERGE DMP data management plan research data management FAIR principles DMP tools DMP templates tool template DMP evaluation RDMkit Data Stewardship Wizard DSW Spanish español -
Course materials
Research Data Management -course
• beginnerRDM research data management data management CONVERGE -
FREE online course
The Power of Genomics to Understand the COVID-19 Pandemic
• beginnercoronavirus covid-19 sars-cov-2 mutations Variant calling Sequencing pandemic surveillance genomics public health Genomic data -
Slides
Data Management Planning workshop for new Life Science Projects
• beginnerData management Deposition Data handling Data retrieval data management plan NeLS TSD metadata sensitive data publication data protection storage identifiers DMP licensing Compliance data life cycle - collect data life cycle - reuse data life cycle - analyse data life cycle - process data life cycle - preserve data life cycle - share data life cycle - plan -
e-learning
EJP RD MOOC "Diagnosing Rare Diseases: from the Clinic to Research and back"
•• intermediateRare diseases Rare Diseases & Research -
Webinar, e-learning
Webinars from the European Reference Network in Rare Hematological Diseases (EuroBloodNet)
•• intermediateRare diseases Rare Diseases & Research -
online modules, e-learning
Rheumatic and musculoskeletal diseases online resources from EULAR (European League Against Rheumatism)
•• intermediateRare diseases Rare Diseases & Research -
educational materials, e-learning
Patient-Centered Outcomes Research Institute (PCORI) Training : A Program for Rare Disease Patient Advocates
• beginnerRare diseases Rare Diseases & Research
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