Webinars from the European Reference Network in Rare Hematological Diseases (EuroBloodNet)

Webinars mainly address very rare diseases, complex disorders, highly specialized procedures and implementation of guidelines. At the same time, webinars' programs that are specifically addressed to patients intend to increase the awareness on a specific rare hematological disease among patients' advocates and patients associations.

Keywords: Rare Diseases & Research

Resource type: Webinar

Target audience: Health Care Professionals, health professionals, Patient Advocates , rare disease patients representatives

Difficulty level: Intermediate

Webinars from the European Reference Network in Rare Hematological Diseases (EuroBloodNet) https://tess.elixir-europe.org/materials/ern-eurobloodnet-thursdays-webinars The aim of these educational activities is to promote the interest on very innovative topics in order to stress among health professionals the cutting-edge advances in the field of Rare Hematological Diseases. One or 2 webinars per month, each of them lasting 45 minutes. Rare Diseases & Research Health Care Professionals health professionals Patient Advocates rare disease patients representatives