Training materials
Keywords: Data management or Rare Diseases & Research or Systems
and Target audience: rare disease patients representatives or The course is aimed at research scientists with a minimum of a degree in a biological discipline, including laboratory and clinical staff, as well as specialists in related fields. or physisians
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Course materials, Training materials
"Ready for BioData Management?" Training Data Stewards for Life Sciences
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e-learning
EJP RD MOOC "Diagnosing Rare Diseases: from the Clinic to Research and back"
•• intermediateRare diseases Rare Diseases & Research -
Webinar, e-learning
Webinars from the European Reference Network in Rare Hematological Diseases (EuroBloodNet)
•• intermediateRare diseases Rare Diseases & Research -
online modules, e-learning
Rheumatic and musculoskeletal diseases online resources from EULAR (European League Against Rheumatism)
•• intermediateRare diseases Rare Diseases & Research -
educational materials, e-learning
Patient-Centered Outcomes Research Institute (PCORI) Training : A Program for Rare Disease Patient Advocates
• beginnerRare diseases Rare Diseases & Research -
Webinar, Video, Presentation, Training materials, e-learning
Findacure's e-learning resources on rare diseases
• beginnerRare diseases Rare Diseases & Research