European Patients’ Academy Webinars

EUPATI proposed webinars on :
• The impact of GDPR (General data protection Regulation ) on clinical trials
• Community Advisory Boards
• Registries
• Experience with Patient Involvement in HTA Processes
• Guidance on Patient Involvement on HTA
• Guidance on Patient Involvement in Regulatory Processes
• Guidance on Patient Involvement in Ethical Review of Clinical Trials
• Guidance on Patient Involvement on Industry-led R&D
• Revision of CIOMS ethical guidelines for biomedical research
• Enabling meaningful patient contribution to ethical review?
• Strengthening patient involvement in Health Technology Assessment (HTA)
• Early collaboration – a recipe for solutions: drug development and treatment strategies may go hand in hand

Keywords: Rare Diseases & Research

Difficulty level: Beginner

European Patients’ Academy Webinars https://tess.elixir-europe.org/materials/european-patients-academy-webinars 12 webinars from EUPATI, for patients & advocates Rare Diseases & Research