Register training material
9 materials found

Target audience: Biomedical researchers 


How to create a concept for the SPHN Dataset

How to create a concept for the SPHN Dataset is a training that was developed in the context of the Swiss Personalized Health Network (SPHN) initiative and is part of a series of trainings centred around the SPHN Interoperability Framework developed by the SPHN Data...

Scientific topics: Computer science, Data management, FAIR data, Medical informatics

Operations: Design, Standardisation and normalisation

Keywords: Clinical data, Semantic Framework, FAIR, Concepts design, Ontology, Semantic inheritance, SNOMED CT, Conceptualization

Resource type: Video, E-Learning

FAIR data - Module 4 (share and publish data)

Partager et diffuser les données. Le cadre juridique, les entrepôts et les licences sur les données

Scientific topics: Bioinformatics, Biology, Data management

Keywords: data sharing, Data publishing, legal framework, data warehouse, licensing, data reuse

Resource type: Slides

FAIR data - Module 3 (Metadata)

Les Métadonnées : les standards du domaine des données omiques en biologie et séances pratiques d’annotations de jeux de données

Scientific topics: Bioinformatics, Biology, Data management

Operations: Data handling

Keywords: metadata, data annotation, life science standards, data sharing

Resource type: Slides

FAIR data - Module 2 (data life cycle)

La vie des données pendant le projet : Principe et outils pour organiser, nommer, versionner, stocker, archiver, mes données

Scientific topics: Data management, Biology, Bioinformatics

Operations: Data handling

Keywords: Data preserving, Data storage

Resource type: Slides

FAIR data - Module 1 (research data)

Research data and their centrality in the research process.
This material is mostly in French.

Keywords: metadata, Data Life Cycle, Reproducibility, Data management plan

Resource type: Slides

Eurordis Open Academy

Through the Open Academy, EURORDIS empowers patient advocates to have the confidence and knowledge needed to bring their expertise to discussions on health care, research and medicines development. EURORDIS alumni engage in these discussions as equal partners, side by side with policy makers,...

Scientific topics: Rare diseases

Keywords: Rare Diseases & Research, Rare Diseases

Resource type: course materials, e-learning

Educational webinars on rare endocrine conditions (ENDO-ERN)

The European Reference Network on rare endocrine conditions (Endo-ERN) aims to improve access to high-quality healthcare for patients with rare hormonal disorders.

Various webinar on rare endocrine conditions are proposed :
- Update on congenital adrenal hyperplasia
- Prophylactic...

Scientific topics: Rare diseases

Keywords: Rare Diseases & Research

Resource type: Webinar, e-learning

Educational webinars on rare and complex epilepsies (EpiCARE ERN)

EpiCARE ERN (European Reference Network for rare and complex epilepsies) has launched a series of educational webinars presented by experts. The webinars are free to join from anywhere in the world, pre-registration is required.
Topics are related to epilepsy diagnostics and treatment and...

Scientific topics: Rare diseases

Keywords: Rare Diseases & Research

Resource type: Webinar, e-learning

Understanding Multiple Sequence Alignments - Lecture Handouts & Utopia Hands-On

This presentation aims to provide a basic understanding of the range of contexts in which protein sequence alignments are used and are useful, focusing on the importance of sequence similarities and differences, and what they tell us. Overall, the objective is to offer different perspectives and...

Keywords: Multiple sequence alignment, Protein sequence analysis, Sequence analysis