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Node: Italy 

  • International Summer School on Rare Disease Registries and FAIRification of Data

    28 September - 2 October 2020

    International Summer School on Rare Disease Registries and FAIRification of Data https://tess.elixir-europe.org/events/international-summer-school-on-rare-disease-registries-and-fairification-of-data-810a68d3-7fff-4daa-86bc-f2e6ea7a4603 Registries are key resources in order to increase timely and accurate diagnosis, improve patients management, tailor treatments, facilitate clinical trials, support healthcare planning and speed up research. This course is composed of two training modules: - during the first three days module *28-30 September 2020*, participants will learn (a) what resources are needed for the establishment/maintenance of a high quality registry (b) the features of successful strategies to ensure (i) long-time sustainability of the registry, (ii) quality, (iii) legal and ethical issues in compliance with the EU General Data Protection Regulation - during the second two days module “FAIRification of data”, *1-2 October 2020*, participants will deepen their knowledge on the single steps of the FAIRification of data and will discover the potential of FAIR registries. In this part a time slot will be allocated to discuss FAIR data management and FAIR project planning. 2020-09-28 14:00:00 UTC 2020-10-02 17:30:00 UTC European Joint Programme on Rare Diseases (EJP-RD), Istituto Superiore di Sanità of Italy Rare diseases Istituto Superiore di Sanità claudio.carta@iss.it [] Cliniciansmedical specialistsregistry curatorsdatabase managershealthcare professionals rare disease patients representatives 30 workshops_and_courses first_come_first_servedregistration_of_interest Rare Diseasesdata FAIRnessRegistryethical issues
  • Train-the-Trainer

    6 - 9 October 2020

    Train-the-Trainer https://tess.elixir-europe.org/events/train-the-trainer-a201e364-a145-425c-a820-bf1c53f37461 Importants dates: Course ONLINE sessions: October 6th-9th, 14:00-17:30 CET. Deadline for applications: Sept 28th Decisions communicated intil: October2nd Our Train-the-Trainer courses are for any scientists: - with little or no experience in training - who want to become an instructor or a better one - who believe that their professional development will encompass delivering training proficiently Instructors: Allegra Via, ELIXIR-IT, Patricia Palagi, ELIXIR-CH and Pedro Fernandes, ELIXIR-PT This course will cover four main topics: Learning principles and how they apply to education and training; Teaching techniques that enhance learner engagement and participation; Design of lessons, course and materials; Assessment and feedback in training and teaching. Examples and discussions will also focus on the challenges presented by academic teaching. The four ONLINE sessions will have a maximum duration of 3.5 hours. Participants will be asked to prepare a small amount of homework, OFFLINE between the sessions. No partcipation fee will be charged. A maximum of 12 selected candidates will be accepted. To apply: write an e-mail to bicourses”at”igc.gulbenkian.pt explaining why you would like to attend, mentioning your personal expectations and background knowledge about delivering training, if any. Please provide contact data, specifically full name, affiliation, address and telephone number. 2020-10-06 14:00:00 UTC 2020-10-09 17:30:00 UTC Pedro L Fernandes IGC - Instituto Gulbenkian de CiênciaSIB Swiss Institute of BioinformaticsIBB pfern@igc.gulbenkian.pt ELIXIR [] 12 workshops_and_courses registration_of_interest online learningpedagogyCourse designCourse development

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