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  • What is Genetic Counselling?

    27 January - 19 April 2020

    What is Genetic Counselling? https://tess.elixir-europe.org/events/what-is-genetic-counselling-de9049ee-4df5-4c8c-a099-9f91c2696d3b # Overview * **Duration:** 6 weeks live, 2 hours per week * **Free** * **Certificate of achievement** available on satisfactory completion * **Start Date:** The course is run ‘live’ for 6 weeks from the start date above. Once this period is over there will be no live monitoring of the forums, but you can still join and complete the course during the remaining period. ### Why join the course? Who are genetic counsellors? Who has genetic counselling and what does a genetic counsellor do? On this course, you will find the answers to these questions whilst learning about the role of genetic counselling in healthcare and the genomic era. You will discover why people seek genetic counselling and how it compares in different contexts and countries. You will explore the main skills and knowledge needed of a genetic counsellor, as well as their key responsibilities to patients. You will also discuss the ethical issues of genetic counselling, and its varied opportunities and challenges for the future. ### Who is the course for? This course is designed for healthcare professionals, clinicians, biomedical research scientists, and anyone curious about genetic counselling. Although not required, a basic knowledge of genetics, genetic testing technologies, and inheritance patterns would help support your learning on this course. # Programme ### What topics will you cover? * Why people would see a genetic counsellor * Some of a genetic counsellor’s key tasks * A genetic counsellor’s key skills and knowledge: counselling skills, medical and scientific knowledge * Ethical issues in genetic counselling * What the future might hold for genetic counsellors ### What will you achieve? By the end of the course, you'll be able to... * Identify why people have genetic counselling and the different contexts in which people receive genetic counselling * Describe the different skills and knowledges needed by genetic counsellors * Compare genetic counselling in different contexts and different countries * Reflect on some ethical issues that arise in genetic counselling * Discuss the role of genetic counselling in healthcare as we enter the ‘genomic era'. ### What software or tools do you need? No specific software, hardware or other resources are required to complete the course. # Educators ## Lead Educators ### Anna Middleton I am the Chair of the Association of Genetic Nurses and Counsellors in the UK and ROI (2018/19) and Head of Society and Ethics Research at the Wellcome Genome Campus, Connecting Science, Cambridge, UK ### Jonathan Roberts I am a pre-registration genetic counsellor at Addenbrooke’s Hospital, Cambridge. I am also a Staff Scientists at the Wellcome Genome Campus. I conduct my research within the Society and Ethics Research group. # What's Included Wellcome Genome Campus Advanced Courses and Scientific Conferences are offering everyone who joins this course a free digital upgrade, so that you can experience the full benefits of studying online for free. This means that you get: * Unlimited access to this course * Includes any articles, videos, peer reviews and quizzes * Tests to validate your learning * A PDF Certificate of Achievement to prove your success when you’re eligible 2020-01-27 09:00:00 UTC 2020-04-19 23:59:59 UTC Wellcome Genome Campus - Advanced Courses [] advancedcourses@wellcomegenomecampus.org [] [] workshops_and_courses [] geneticcounsellingHDRUK
  • Data Management Planning workshop for Life Science Projects

    4 March 2020

    Bergen, Norway

    Data Management Planning workshop for Life Science Projects https://tess.elixir-europe.org/events/data-management-planning-workshop-for-life-science-projects We are pleased to announce the Data Management planning workshop for Life Scientists organised in Bergen by [ELIXIR Norway](https://www.elixir-norway.org/), [Digital Life Norway](https://digitallifenorway.org/) and [UiB library](https://www.uib.no/en/ub). The intended audience are researchers (PhD candidates, Post Doctoral Fellows, Researchers, Associate Professors and Professors) who are planning to submit a grant application for a research project. Max. number of participants is 30. In this course we will cover how to generate a data management plan for a Life Science research project, which will meet the requirements of the funding organisations. ## Course content: ##### 0900 - 0915 Introduction ##### 0915 - 0945 Requirements from institutions & funding bodies * H2020/ERC * Research Council Norway ##### 0945 - 1015 About legal requirements * Health Research Act * Personal Data Act ##### 1015 - 1030 Short break ##### 1030 - 1115 Licensing of data, biological material and software ##### 1115 - 1200 Information on national and local storage infrastructures * NeLS/StoreBioInfo * NIRD * TSD * UiB Computing & Storage resources * SAFE ##### 1200 - 1230 Lunch ##### 1230 - 1315 Relevant deposition repositories/ data archives * domain specific archives (ELIXIR/EMBL-EBI, NCBI) * NIRD archive * UiB Open Research Data/ DataverseNO * NSD ##### 1315 - 1330 Short break ##### 1330 - 1600 Hands on training and assistance to generate a data management plan ## Requirements: Bring your own laptop and your research project if you have one. You will get the opportunity to set up a data management plan for your project with help of the [Data Steward Wizard tool](https://elixir-no.ds-wizard.org) using a structured and detailed questionnaire with references to relevant resources. #### [Register](https://skjemaker.app.uib.no/view.php?id=7921185) before 27th of February 2020 2020-03-04 09:00:00 UTC 2020-03-04 16:00:00 UTC ELIXIR-Norway Lars Hilles gate 30, UiB Learning Lab Store læringsrom, http://bit.ly/2RDl0hX, Bergen, Norway Lars Hilles gate 30, UiB Learning Lab Store læringsrom, http://bit.ly/2RDl0hX Bergen Norway 5008 Data management Data submission, annotation and curation University of Bergen Beate Krøvel Humberset, Kjersti Hasle Enerstvedt and Korbinian Bösl Digital Life Norway PhD StudentsPost DocsProfessorsResearchers 30 workshops_and_courses first_come_first_served Data management plandata management
  • Data Management Planning workshop for Life Science Projects

    11 March 2020

    Ås, Norway

    Elixir node event
    Data Management Planning workshop for Life Science Projects https://tess.elixir-europe.org/events/life-science-data-managment-planning-workshop We are pleased to announce the Data Management planning workshop for Life Scientists organised in Ås by [ELIXIR Norway](https://www.elixir-norway.org/) and [Digital Life Norway](https://digitallifenorway.org/). The intended audience are researchers (PhD candidates, Post Doctoral Fellows, Researchers, Associate Professors and Professors) that are planning to submit a grant application for a research project. Max. number of participants is 20. The topic is on how you can generate a data management plan for a Life Science research project that will meet the requirements of the funding organisations. ## Course content: ##### 0900 - 0945 Requirements from the funding bodies * NMBU * H2020/ERC * Research Council Norway ##### 0945 - 1015 About legal requirements * Health Research Act * Personal Data Act ##### 1015 - 1030 Short break ##### 1030 - 1115 Licensing of data, biological material and software ##### 1115 - 1200 Information on national and local storage infrastructures * NeLS/StoreBioInfo * NIRD * TSD * NMBU w: drive ##### 1200 - 1230 Lunch ##### 1230 - 1315 Relevant deposition repositories/ data archives * domain specific archives * NIRD archive * NMBU Open Research Data/ DataverseNO ##### 1315 - 1330 Short break ##### 1330 - 1600 Hands on training and assistance to generate a data management plan ## Requirements: Bring your own laptop and your research project if you have one. You will get the opportunity to set up a data management plan for your project with help of the [Data Steward Wizard tool](https://elixir-no.ds-wizard.org) using a structured and detailed questionnaire with references to relevant resources. #### [Register](https://skjemaker.app.uib.no/view.php?id=7883809) before 01 March 2020 2020-03-11 09:00:00 UTC 2020-03-11 16:00:00 UTC ELIXIR-Norway Universitetstunet, Ås, Norway Universitetstunet Ås Norway 1433 Data management Norwegian University of Life Sciences Solveig Fossum-Raunehaug, Korbinian Bösl, Thu Hien To Digital Life Norway PhD studentsPost DocsResearchersProfessors 20 workshops_and_courses first_come_first_served DMPData management plandata management
  • Data Management Planning workshop for Life Science Projects

    20 March 2020

    Trondheim, Norway

    Elixir node event
    Data Management Planning workshop for Life Science Projects https://tess.elixir-europe.org/events/data-managment-planning-workshop We are pleased to announce the Data Management planning workshop for Life Scientists organised in Trondheim by [ELIXIR Norway](https://www.elixir-norway.org/), [Digital Life Norway](https://digitallifenorway.org/) and [Research Data@NTNU](https://innsida.ntnu.no/researchdata). The intended audience are researchers (PhD candidates, Post Doctoral Fellows, Researchers, Associate Professors and Professors) that are planning to submit a grant application for a research project. Max. number of participants is 30. The topic is on how you can generate a data management plan for a Life Science research project that will meet the requirements of the funding organisations. ## Course content: ##### 0900 - 0945 Requirements from institutions & funding bodies * NTNU * H2020/ERC * Research Council Norway ##### 0945 - 1015 About legal requirements * Health Research Act * Personal Data Act ##### 1015 - 1030 Short break ##### 1030 - 1115 Licensing of data, biological material and software ##### 1115 - 1200 Information on national and local storage infrastructures * NeLS/StoreBioInfo * NIRD * NTNU Computing & Storage resources * TSD * HUNT-Cloud * NICE-1 ##### 1200 - 1230 Lunch ##### 1230 - 1315 Relevant deposition repositories/ data archives * domain specific archives (ELIXIR/EMBL-EBI, NCBI) * NIRD archive * NTNU Open Research Data/ DataverseNO * NSD ##### 1315 - 1330 Short break ##### 1330 - 1600 Hands on training and assistance to generate a data management plan ## Requirements: Bring your own laptop and your research project if you have one. You will get the opportunity to set up a data management plan for your project with help of the [Data Steward Wizard tool](https://elixir-no.ds-wizard.org) using a structured and detailed questionnaire with references to relevant resources. #### [Register](https://skjemaker.app.uib.no/view.php?id=7885006) before 10 March 2020 2020-03-20 09:00:00 UTC 2020-03-20 16:00:00 UTC ELIXIR-Norway Olav Kyrres gate, 17 KS21 http://bit.ly/2tG9ysW, Trondheim, Norway Olav Kyrres gate, 17 KS21 http://bit.ly/2tG9ysW Trondheim Norway 7030 Data management Norwegian University of Science and Technology Ingrid Heggland, Morten Beck Rye, Korbinian Bösl Digital Life Norway PhD studentsPost DocsResearchersProfessorsAll postgraduates 30 workshops_and_courses first_come_first_served DMPdata managementData management plan
  • Data Management Planning workshop for Life Science Projects

    27 March 2020

    Oslo, Norway

    Data Management Planning workshop for Life Science Projects https://tess.elixir-europe.org/events/data-management-planning-workshop-for-life-science-projects-9baab407-a36b-49bf-aa27-76cf0046cc79 We are pleased to announce the Data Management planning workshop for Life Scientists organised in Oslo by [ELIXIR Norway](https://www.elixir-norway.org/), [Digital Life Norway](https://digitallifenorway.org/) and [UiO Research Data team](https://www.uio.no/english/for-employees/support/research/research-data-management/). The intended audience are researchers (PhD candidates, Post Doctoral Fellows, Researchers, Associate Professors and Professors) who are planning to submit a grant application for a research project. Max. number of participants is 30. In this course we will cover how to generate a data management plan for a Life Science research project, which will meet the requirements of the funding organisations. ## Course content: ##### 0900 - 0915 Introduction ##### 0915 - 0945 Requirements from institutions & funding bodies * UiO * H2020/ERC * Research Council Norway ##### 0945 - 1015 About legal requirements * Health Research Act * Personal Data Act ##### 1015 - 1030 Short break ##### 1030 - 1115 Licensing of data, biological material and software ##### 1115 - 1200 Information on national and local storage infrastructures * NeLS/StoreBioInfo * NIRD * TSD * UiO Computing & Storage resources ##### 1200 - 1230 Lunch ##### 1230 - 1315 Relevant deposition repositories/ data archives * domain specific archives (ELIXIR/EMBL-EBI, NCBI) * NIRD archive * DataverseNO * NSD * generic repositories ##### 1315 - 1330 Short break ##### 1330 - 1600 Hands on training and assistance to generate a data management plan ## Requirements: Bring your own laptop and your research project if you have one. You will get the opportunity to set up a data management plan for your project with help of the [Data Steward Wizard tool](https://elixir-no.ds-wizard.org) using a structured and detailed questionnaire with references to relevant resources. #### [Register](https://skjemaker.app.uib.no/view.php?id=7924299) before 20th of March 2020 2020-03-27 09:00:00 UTC 2020-03-27 16:00:00 UTC ELIXIR-Norway Moltke Moes vei 39, Georg Sverdrups hus, Auditorium 2, https://www.uio.no/om/finn-fram/omrader/blindern/bl27/, Oslo, Norway Moltke Moes vei 39, Georg Sverdrups hus, Auditorium 2, https://www.uio.no/om/finn-fram/omrader/blindern/bl27/ Oslo Norway 0851 Data management University of Oslo Elin Stangeland, Ståle Nygård, Korbinian Bösl Digital Life Norway PhD Students Postdocs and Staff members from the University of CambridgeProfessorsResearchers 30 workshops_and_courses first_come_first_served Data management plandata management
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