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4 events found

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  • 6th International Summer School on Rare Disease and Orphan Drug Registries

    10 - 14 September 2018

    Roma, Italy

    6th International Summer School on Rare Disease and Orphan Drug Registries https://tess.elixir-europe.org/events/6th-international-summer-school-on-rare-disease-and-orphan-drug-registries The "6th International Summer School on Rare Disease and Orphan Drug Registries" is organized by the National Centre for Rare Diseases – Istituto Superiore di Sanità in collaboration with RD-Connect, ELIXIR-IT, ELIXIR-NL, EURORDIS, Orphanet, EuRRECa, European Reference Networks, EPIRARE and ICORD. Registries are key resources in order to increase timely and accurate diagnosis, improve patients management, tailor treatments, facilitate clinical trials, support healthcare planning and speed up research. The course will provide participants with useful tools and methodologies for establish a registry, the quality of the data collected and how a registry is turned into a FAIR resource. It intends i) to promote the establishment of Findable, Accessible, Interoperable, Reusable (FAIR) registries in compliance with IRDiRC and EU Recommendations and ii) to support cooperation among different registry stakeholders and coordination with registries that are developed within European Reference Networks and National Plans in the EU. 2018-09-10 08:00:00 UTC 2018-09-14 17:30:00 UTC D. Taruscio, M. Roos, C. Carta Istituto Superiore di Sanità, Via Giano della Bella, 34, Roma, Italy Istituto Superiore di Sanità, Via Giano della Bella, 34 Roma Città Metropolitana di Roma Italy Rare diseases Istituto Superiore di Sanità rareregistries-school@iss.it [] database managersregistry curators health professionalsresearchersmedical specialists 27 workshops_and_courses registration_of_interest Registryrare diseaseFindableAccessibleInteroperableReusableFAIR
  • International Summer School on Rare Disease Registries and FAIRification of Data

    23 - 27 September 2019

    Roma, Italy

    International Summer School on Rare Disease Registries and FAIRification of Data https://tess.elixir-europe.org/events/international-summer-school-on-rare-disease-registries-and-fairification-of-data Registries are key resources in order to increase timely and accurate diagnosis, improve patients management, tailor treatments, facilitate clinical trials, support healthcare planning and speed up research. This course is composed of two training modules: The first module “Rare Disease Registries” starts on September 23 till September 25, 2019, during these three days participants will learn (a) what resources are needed for the establishment / maintenance of a high quality registry (b) the features of successful strategies to ensure (i) long-time sustainability of the registry, (ii) quality, (iii) legal and ethical issues in compliance with the EU General Data Protection Regulation and (iv) FAIR principles The second module “FAIRification of data”, starts on September 26 till September 27, 2019 during these two days participants, working with IT-trainers, will make use case data FAIR. The potential of a FAIR registry, as the basis for cross resource questions, will be demonstrated by executing a query across the use cases that become FAIR. In this part a time slot will be allocated to discuss FAIR data management and FAIR project planning. 2019-09-23 09:00:00 UTC 2019-09-27 18:00:00 UTC European Joint Programme on Rare Diseases (EJP-RD), Istituto Superiore di Sanità of Italy Via Giano della Bella, 34, Roma, Italy Via Giano della Bella, 34 Roma Città Metropolitana di Roma Italy Rare diseases Istituto Superiore di Sanità claudio.carta@iss.it [] Cliniciansmedical specialistsregistry curatorsdatabase managershealthcare professionals rare disease patients representatives workshops_and_courses first_come_first_servedregistration_of_interest Rare DiseasesRegistryethical issues
  • Practical Data and Software Skills for Reproducible Research Workshops

    2 - 4 October 2019

    Roma, Italy

    Practical Data and Software Skills for Reproducible Research Workshops https://tess.elixir-europe.org/events/practical-data-and-software-skills-for-reproducible-research-workshops Two one-day introductory workshops on the skills and technologies you need for publishable and reproducible data-driven science. People can register for one or both workshops. Practical Data Skills Workshop: 2-3 October, 2019 Practical Software Skills Workshop: 3-4 October, 2019 Working with “Big data” is challenging for most researchers and the barriers to publication can be difficult. These workshops introduce free open-source approaches that reduce these challenges and help you deliver research that is more impactful, open, and reproducible. Training will focus on solutions developed by publicly funded cyberinfrastructure developed in the US (CyVerse) and Europe (CyVerse UK, ELIXIR, EOSC, and others). Lessons learned will prepare you with skills you can apply no matter which computing platforms you use. 2019-10-02 14:30:00 UTC 2019-10-04 14:30:00 UTC University of Arkansas in collaboration with Cold Spring Harbor Laboratory, the National Research Council of Italy, Earlham Institute, Center for Research and Technology Hellas (CERTH), the Netherlands eScience Center and the University of Arizona University of Arkansas Rome Center: Palazzo Taverna, Via di Monte Giordano, 36 - 00186 Rome Italy., Roma, Italy University of Arkansas Rome Center: Palazzo Taverna, Via di Monte Giordano, 36 - 00186 Rome Italy. Roma Città Metropolitana di Roma Italy 00186 University of Arkansas Jason Williams (Cold Spring Harbor Laboratory, NY) Email: Williams@cshl.edu University of Arkansas Investigators and researchers working in all areas of the life sciences. workshops_and_courses first_come_first_served Open scienceReproducible ResearchData skillsSoftware skills
  • BioSB course: Machine learning for bioinformatics and systems biology

    7 - 11 October 2019

    tbd, Netherlands

    Elixir node event
    BioSB course: Machine learning for bioinformatics and systems biology https://tess.elixir-europe.org/events/biosb-course-machine-learning-for-bioinformatics-and-systems-biology Course overview Modern biology is a data-rich science, driven by our ability to measure the detailed molecular characteristics of cells, organs, and individuals at many different levels. Interpretation of these large-scale biological data requires the detection of statistical dependencies and… The post BioSB course: Machine learning for bioinformatics and systems biology appeared first on Dutch Techcentre for Life Sciences. 2019-10-07 09:00:00 UTC 2019-10-11 00:00:00 UTC tbd, Netherlands, tbd, Netherlands tbd, Netherlands tbd Netherlands [] [] [] workshops_and_courses [] []

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